Caring for carers of people with dementia: A protocol for harnessing innovation through deploying leading edge technologies to enable virtual support groups and services

Parkinson, L, Banbury, A, Livingstone, A, Gordon, S, Ray, B, Byrne, L, Nancarrow, S, Doran, C, McAllister, M, Petersen, C, Pedell, S and Wood, D 2018, 'Caring for carers of people with dementia: A protocol for harnessing innovation through deploying leading edge technologies to enable virtual support groups and services', in Maaken E.L. van den Berg, Anthony J. Maeder (ed.) Proceedings of the 5th Global Telehealth Conference (GT 2017), Adelaide, Australia, 24 November 2017, pp. 29-41.


Document type: Conference Paper
Collection: Conference Papers

Title Caring for carers of people with dementia: A protocol for harnessing innovation through deploying leading edge technologies to enable virtual support groups and services
Author(s) Parkinson, L
Banbury, A
Livingstone, A
Gordon, S
Ray, B
Byrne, L
Nancarrow, S
Doran, C
McAllister, M
Petersen, C
Pedell, S
Wood, D
Year 2018
Conference name GT2017: Telehealth for our Ageing Society - Ageing Well: Volume 246
Conference location Adelaide, Australia
Conference dates 24 November 2017
Proceedings title Proceedings of the 5th Global Telehealth Conference (GT 2017)
Editor(s) Maaken E.L. van den Berg, Anthony J. Maeder
Publisher IOS Press
Place of publication Netherlands
Start page 29
End page 41
Total pages 13
Abstract In rural Australia, knowledge and utilisation of support by informal carers is lacking. During the caregiving period, socioemotional support from family and friends plays an important role in sustaining caregiving activities. Post-care, these social networks facilitate adjustment to role change and dealing with grief. Developing and improving access to peer support to enable carers to effectively cope with the challenges of caring may positively influence their caring experience. The primary objective of this project is to examine the response of isolated rural carers for older people with dementia to a videoconference (VC) based peer support and information program. Will participation in the program improve self-efficacy, quality of life, and mental health? Secondary objectives are to develop a VC based peer support program for isolated rural carers for older people with dementia, using a co-design approach; and to assess the feasibility of VC technology for enhancing social support to family caregivers in their homes. This project will collaboratively co-design and evaluate a facilitated VC peer support and information program to carers of people with dementia within rural areas. Carers will be recruited through community health and care providers. Program development will use an information sharing approach to facilitate social interaction. A focus of the project is to use off-the-shelf technology which will be more accessible than specialised bespoke solutions that are currently popular in this area of research. A mixed methods repeated measures randomized wait list design will be used to evaluate the project. The primary outcomes are self-efficacy, quality of life, and mental health. Secondary outcomes are perceived social support and user satisfaction with the technology, and intention to continue VC interaction.
Subjects Health Promotion
Keyword(s) Social isolation
carer
dementia
peer support
rural
videoconferencing
DOI - identifier 10.3233/978-1-61499-845-7-29
Copyright notice © 2018 The authors and IOS Press. All rights reserved.
ISBN 9781614998440
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